I Was Wrong!
My first child was born without complications, met all milestones, and seemed to be developing like any other typical child of the same age. Somewhere around the time most children receive their scheduled childhood vaccinations, my child suffered a series of setbacks that can only be described as regressions. Loss of interest in favorite toys, loss of speech, would only eat a few foods, only interested in a few videos, terrible bowel movements, tantrums, etc. Pretty much the same symptoms I've heard other parents report as reactions to vaccines.
I became convinced that my child was made autistic by routine vaccination. Was it the MMR, an ingredient in one of the other vaccines, thimerosal? I turned to the internet to learn more. It didn't take long to find other stories like mine. I made friends, talked to other parents who understood my anger and frustration, and found something to blame along with stories of hope.
My second child would benefit from all I had learned over the years. I wouldn't take any chances with this one. No vaccines, no antibiotics, no anything else that may contribute to autism. I knew better now and my typical child would be all of the proof I would need.
Then something strange happened. I started to notice a few behaviors that I was all too familiar with from my first child. Restricted interests in foods, toys, videos, terrible bowel movements, loss of language, etc. How could this be??? It had to have been the vaccines for my first child, it all made perfect sense and so many other parents had similar stories. How could my second, completely unvaccinated child, regress and become autistic? There may be many explanations but the inescapable truth was staring me right in the eyes. I WAS WRONG! Refusing vaccines does not guarantee your child will escape being autistic.
It is possible for an unvaccinated child to be autistic and to regress into autism right around the same time they would normally be vaccinated. My child was all of the proof I needed but was I the only one? I don't remember talking to any parents with unvaccinated children with autism let alone second or third siblings. There were a few parents that I'd lost contact with after they went off to have more children. What happened to them?
It turns out there are plenty of other unvaccinated children on the spectrum. Many of them siblings of fully vaccinated children with autism. Why hadn't I heard of them before? For the answer to that, all I needed to do was think about the difficulties I faced while coming to terms with my situation and publicly admitting. I WAS WRONG!
It's not an easy thing to admit, especially after all of the years and arguments I've had where I angrily insisted it was always the vaccines. I have several friends in the same situation. None of them have an interest in telling their stories or admitting they may have been wrong. They don't have the time, they don't feel obligated, or they are afraid of the backlash from some of the more vocal anti-vaccine groups out there.
So here I am telling my story with the hope that it will encourage a few people to share their stories and perhaps have the effect of getting others to consider that they too may be mistaken. It happened to me.


26 Comments:
Although often disparaged, changing one's mind about something can be a good thing if learning and growing are involved.
Wonderful post and all the best to your family.
Here's to science, acceptance, humility, and benevolence.
"Here's to science, acceptance, humility, and benevolence."
Amen to that and thank you Mr. Cubbins.
From what I know of science and procedure, it is important to keep an open mind and a willingness to move on when a theory is no longer supported by observations. I hope that is roughly accurate.
Still learning
All the best to you and your family.
I look forward to more entries.
(We have autism in our family. My biggest goal is to improve what we can improve and accept what we can't and just be grateful for the children we have, as they're each nice in their own ways.)
THANK YOU.
Thank you for telling your story. Because mercury isn't the place to look, and laying blame doesn't help the child, either in making progress towards living life, or in developing good self esteem (imagine being a mistake all your life!)
Thanks, from an autistic who's spent 23 years being the wrong child.
Julia Said: My biggest goal is to improve what we can improve and accept what we can't and just be grateful for the children we have, as they're each nice in their own ways
Thank you Julia. Wise words indeed and I completely agree.
...and thank you Kassiane for the nice comment. I've enjoyed reading your comments and insights on other blogs. I'm honored you've stopped by.
Would you mind if I set up a feed on Live Journal for this blog? I'll announce it in the community aspergers but not mention it anywhere else, personally. If you do mind, I won't.
(I'm juliarandolph on LJ.)
Thank you Julia,
I don't mind at all. Please do
(I'm Moggymania from LJ, came over from the LJ Asperger group...autistic age 28. :)
Congrats on figuring out what so many of us have been trying to get through to "vaccine" parents for so long -- haven't run into many (or any) that actually changed their mind, though! (I saw one have the same "second unvaccinated kid is autistic too" but then immediately start blaming OTHER theoretical sources of mercury. Sigh.)
Now the next phase: learning that we don't want to "escape" being what we are, any more than you want to "escape" being you are (or would if you were the neurological minority). Being autistic does not harm us in itself, just changes how we develop; the prejudice of people that *think* being autistic is bad does. We can communicate, we have empathy, we play, we enjoy life...we just do it in our own autistic way, rather than the way NTs do. Teaching us doesn't have to mean making us do things in a way that conflicts with our neurology or urges us to hide that we are different.
I am writing that as a full flaming obviously-autistic woman, before you leap to the conclusion that I couldn't possibly feel this way and be "really" autistic. I have a little page of links, in case you have not seen them before, up at
http://sonic.net/mustang/moggy/AutismLinks.html
Hi! My name is Sue. I am the mother of two sons with Autism and I also am self-dx AS. I am 54 and I was never vaccinated, but I have had exposure to mercury, but also have some weird immunological lack of resistance to measles viruses and a few other things.
I agree - mercury is not all of it. Did you happen to see this article, though, which mentions a strain of mice predisposed to Autism, after exposure to mercury?
Not that I think that it's all vaccines, but I do have a cat that I swear is Autistic, who had a behavior change after vaccination. I still think it's primarily genetic predisposition, however.
Here is the link that I posted in my blog.
http://jehannamama.livejournal.com/107330.html?mode=reply
It's from here:http://www.upi.com/ConsumerHealthDaily/view.php?StoryID=20060202-122053-5023r
I also find you through the LJ link. I'm a mother who is facing the same truths you are: my oldest was vaccinated and has Asperger's Syndrome, so I decided not to vaccinate my youngest, and she ended up being severely autistic- far more autistic, in fact, than her brother or any of her vaccinated cousins.
The "generation rescue" types tell me that my daughter still must be mercury poisoned, by some other source, but I was so careful to eliminate all possible sources of exposure. I don't believe mercury causes autism anymore. I now believe autism is genetic, pure and simple.
So now my goal is to learn to accept my children for the gifts that they are, and stop looking for someone or something to blame. I wouldn't change a thing about either of my children, anyway- they are just as they were meant to be.
Looking forward to reading your future posts!
Thanks Moggy,
Ready, willing, and able to learn and already down with phase two :-)
I'm afraid I don't know about LJ. Can you tell me more or post a link? It looks like there have been a few vistors who have mentioned it. Thanks your comments and kind words.
Thank You Sue (Jehannamama),
If you agree that mercury is "not all of it" then I'm afraid we don't agree at all. You may have guessed by the name of the blog, but my opinion is that it's NOT MERCURY. I do appreciate and respect all opinions but the science and my personal experience leads me to believe mercury isn't involved. It causes mercury poisoning if a person is exposed to enough, just like lead causes lead poisoning, but heavy metal toxicity isn't autism.
I have read about the mice you've mentioned but, as I understand it, these mice where bread to be autoimmune and mercury sensitive, not autistic. My children are definitely not inbred.
Autism Diva has some good comments about these mice if you are interested: http://autismdiva.blogspot.com/
I hear they are going to try to make them less autistic with gold. Weird
Have you started an ABA program for your cat? :-)
Great to hear from another parent of an unvaccinated child, Lili.
Yes the GR bunch are quick to identify other sources of mercury poisoning and I'm sure I'll be asked questions concerning fish consumption, proximity to power plants, amalgams, etc.
That's fine, I'm not out to convince the world my children are mercury free. The point I would like to make is that seeing a child regress after vaccination leads a parent to believe vaccines are the trigger. Without another unvaccinated child for comparison, it seemed obvious to me, and I'm sure it is just as obvious to many other parents.
I was wrong and I'm probably not the only one.
NOtmercury, just so you know, LJ is "LiveJournal"...you can find it at http://www.livejournal.com . It's basically a blogging site like BlogSpot, but with more of an aspect of community. My username there is lilirose.
The thing about that study with the mice, Jehannamama, is that the 'autistic' reactions mentioned in the mice exposed to mercury are, from what I've seen on the occasions I've worked with the lab rodents here at college, essentially the same as the behaviors exhibited by normal, generic, non-"autistic" mice exposed to any number of various environmental stressors, including overcrowding.
All that the study really proves is mercury causes stress in mice bred for mercury sensitivity, and that their stress is reduced when they're treated for it.
Ah, and since I forgot it in my original comment... I just wanted to say to you, NM, thank you. The courage and flexibility and responsibility that you've shown here warm my heart. I really wish that I could somehow reach through the computer and hug you for what you're doing here.
NotMercury,
Your post is evidence of the beauty of the scientific method in and of itself - open to new and better evidence at all times.
Besides that it is honest and focused on what really matters.
500 of BC's hats off to you!
Thank you Feathercircle and thank you Dad Of Cameron. I really appreciate the kind words and support.
lili, I'll take a look at LJ when I find the time. Thanks for bringing me up to speed.
Thank you for this post. I am from Canada. My child is 9 years old, and I became aware of the autism-mercury hypothesis in 2000. Since I am a chemist, the hypothesis had a sort of terrible logic to it - after all I knew about the toxicity of the various forms of mercury. But then I found out that Canada had removed thimerisol from its shots in 1994.
http://www.phac-aspc.gc.ca/im/q_a_thimerosal_e.html
So, I knew this could not have contributed to ASD in my child. But, I watched with a kind of weird fascination as the story kept going and going in the US. Recently, people in Canada started to jump on the autism=mercury bandwagon, and when I tried to point out to them that thimerisol was not in the Canadian shots, I was accused of being in favor of injecting mercury, of having a naive belief in the honesty of our federal government, and of siding with "big pharma". People tried to argue that there really was mercury in the Canadian shots, that they were really the same as the ones manufactured for the US.
You know what? The rates of ASD in Canada is almost the same as in the US, one in 200.
http://www.autismsocietycanada.ca/understanding_autism/what_are_asds/index_e.html
I agree with you! Autism is NOTMERCURY.
I'm sorry to hear that things did not work out as you had hoped with your children, but I would like to point out (again) that Autism is not the end of their future or anything. While autism is an unfortunate condition, someone with autism spectrum disorders is still very functional and can lead a perfectly normal life (for example, look at Autism Diva who frequently posts about this topic).
I'm also pleased that you've realised that mercury is just one of those things that isn't likely to be a cause of autism. While it is true that mercury inflicts damage on the nervous system, the kind of 'damage' seen in autism is very different from the general damage caused by mercury.
In general, mercury does non-specific damage all over the peripheral and central nervous system, where the differences in autism tend to be in specific regions of the brain. It's just too hard to believe without solid scientific backing that mercury can suddenly perform the equivalent of brain damage (such as a smart bomb) when it's normally a nuclear missile in what it affects.
I wish you very well in the future and that your children grow to as open minded as you are. It takes a lot of courage to admit you were wrong.
Thank you Anonymous from Canada,
I'm glad you found my blog and agree that autism is not mercury poisoning. I know one mother who was so sure it was thimerosal she insisted on thimerosal free shots for her next child and this was back when many shots still contained thimerosal. The child was diagnosed PDD but that was interpreted as the effects of some trace mercury content in the mercury free vaccines. The true believers will always manage to identify a source of mercury. Now that it is out of most shots they are pointing out environmental sources, never mind all of the other bad stuff in the environment. Their minds are made up, I guess. No chance they could be wrong.
JM O'Donnell said:
It's just too hard to believe without solid scientific backing that mercury can suddenly perform the equivalent of brain damage (such as a smart bomb) when it's normally a nuclear missile in what it affects.
That's a good way of looking at it JM. Thank you for the analogy, or is it a simile? I can never remember the difference. Anyway, it works for me.
Thank you for your kind words. It hasn't worked out the way I had planned, but when does it ever in life? I knew having children carried the possibility they wouldn't turn out to be everything I'd hoped, but I love them very much and count my blessings every day. Autism can be very challenging at times, but I try to remember the greater challenge belongs to them. My challenge is to remain patient and supportive as they overcome their challenges.
I think it's the same for all parents to some degree. It's all relative.
Thank you so much for not disappearing.
The wonderful thing about living in this country is being able to believe what you want to believe and tell everyone about it.
I have read every comment on this particular posting and I will have to say I disagree with a majority of them.
I too had an autistic child, in fact I had two autistic children, but I can flat out say that I do not have them anymore. I have my two sons back. Since ridding their bodies of the many toxins (including mercury, aluminum,..etc.) we have seen a return to what people consider normal behavior. So many people who had seen my children three years ago cannot believe they are the same children.
As much as people don't want to admit that mercury / vaccinations had a role in their childs autism, it does. Now realize that these shots are not the sole source of toxins, but they are definately the start. I say this because my oldest son had recieved over 220% the federally allowed exposure limit to mercury eight weeks into his precious life. That night my son started projectile vomitting, diarrhea, ran a fever and cried almost the entire night. This was also the first night that he did not sleep through the entire night. This was also the start of six months of what pediatricians call cholic.
So, believe what you want to believe, but I will always believe that the vaccinations played a major role in both of my sons illness.
Oh, and by the way, I now have a one year old daughter who has never been vaccinated and she is the healthiest, brightest baby I have ever seen.
Thank God for freedom of choice.
Thank you for sharing. I also appreciate the tone of your blog - unlike autism diva, you don't seem full of vitriol.
Like any parent I'm worried about this. I read the stories about the behavioral changes happening the very day of the vaccination and it makes such sense. So far so good, I have chosen to vaccinate. My daughter gets fevers in reaction.
At any rate, all I wanted to say is, thank you for sharing your story and for doing your best to be a good parent - because that seems to be what you are doing with this blog.
Hi notmercury,
You should investigate the possibility that Lyme disease caused Autism in your children.
You'll have to work with a doctor who is experienced at testing for the Borrelia bacteria because your children are probably not producing detectable antibodies to those bacteria.
If Lyme disease is one cause of Autism, it does not excuse the negative role thimerosal and mercury as problems for children. The production of glutathione is suppressed in people with Lyme disease and that leads to toxic accumulations of mercury and other heavy metals.
- J. Goshen
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